Sunday, January 24, 2010

28: American Deaf and Haiti (Updated with Video)

As a Deaf man and a concerned American, it's probably normal for me to feel concern for those Deaf, Deaf-blind and hard-of-hearing Haitians who survived the earthquake. While the Deaf community has its tightness and connectivity to support it in times of stress, often we lose out during emergencies due to lack of communication about supplies and services. Examples where Deaf people received limited information due to a lack of captioned emergency broadcasts are everywhere in the U.S., for example.

So it was with trepidation and excitement that I spoke with my senior class about beginning a project with which we could somehow do our part, or at least a little, to help this particular disadvantaged group. I began watching aggregators such as Deafvillage and Deafread and other places on the internet. I wanted to identify links and organizations established to help such groups. I also began to watch major Deaf organizations on the internet, such as the NAD and the WFD.

In general, there hasn't been a lot of blogging on this issue. The best has come from Deaf Anthology (videos provided) and Deaf Haitians - more on the latter later.

The World Federation for the Deaf (WFD) and American National Assiociation of the Deaf (NAD) both have issued letters of sympathy to the country in question. The WFD claims to be investigating connections and avenues. The NAD has said it does not have the resources to set up its own specific fund, but that leaves open the avenue of it connecting with international agencies and providing links, as well as other, future forms of aid. So it seems a lot of our national and international agencies are wondering what to do and who, specifically, to help.

Gallaudet University, however, has already organized fundraisers and activities (including, most notably, a Spin-4-Haiti event on February 5th and 6th) designed to raise money specifically for the Instituit Montfort, a school for the Deaf and Deaf-blind in Haiti which currently boasts some 600+ students. Montfort, which has sent many students to American Deaf colleges, reports that it has lost a school building in Port-au-Prince, and that students and faculty at the residential institution are currently unsheltered. Gallaudet departments and faculty members are also engaged in action and instruction targeted towards aiding the survivors of the earthquake, and specifically the Deaf community. They've partnered with organizations such as Global Reach Out, Inc. which works to enable Deaf youth to create change internationally. The Rochester National Technical Institute of the Deaf, another major Deaf institution in America, has yet to report on actions being taken in its college. Given, however, that it has many successful students and graduates from Haiti, such action is probably already underway. Colleges, of course, have the benefit of unlimited resources of energy: the passion of young adults.

Nationally and internationally, Deaf organizations such as Deaf Welcome are mobilizing to provide various resources. Deaf Welcome, for example, is providing laptops and sign language interpreters so that local survivors can use international relay services to contact family members and loved ones worldwide. It's as well to recall they're also drumming up business; such larger organizations have financial resources to make these products directly available to survivors. Personally, given that Haiti is a third world country, I'm not sure how beneficial providing videophone services is going to be right now, but they're also providing solar cells and (it seems) wireless devices, so it's possible this could be very beneficial for the people of Haiti.

But what about the rest of us? Who do we donate to, we who do not have either unlimited energy or resources? I discussed this with my students. How do we know that aid organizations will not waste our money, or spend it the wrong way? More importantly, knowing what we do about Deaf history, what concerns do we need to address before we can start giving? After a decade of stories and shocking revelations about abuses of Deaf children at schools, one might be concerned about donating directly to schools in Haiti - although as far as anyone has been able to tell, the two most hurt by the quakes (St. Vincent's and Instituit Montfort) have operated in an aboveboard manner, with respect both for the education of their students and their self-image. Evidence of this is how many successful graduates have gone on to higher education and are now returning to their schools in times of need. But questions like these, and the existence of a variety of local organizations in the country, make taking that extra step of choosing who is trustworthy almost a harder job than helping itself can be. This tangled web is examined by the website Deaf Haitians, where Deaf students who come from the shaken country are working to gather support for survivors. Deaf Haitians points out, for example, that CAPPA Haiti is the only secular (non-religious) organization serving the Deaf/HOH/Deaf-blind population in Haiti. Local perceptions like this are important to informed, sensitive giving. I look forward to reading more blogs from this site.

(Recently added)
Faithful Readers are getting in touch. Two sent in a link to the PAZAPA video embedded below. PAZAPA is a Haitian agency serving the disabled population, including the deaf and hard of hearing population. The video below shows some of their services.

Right now I'm with Gallaudet, and either of the institutes in question - and many of the agencies - look like great places to begin if you want to make sure your money is directed at helping deaf, hard of hearing, and deaf-blind survivors. What's your school or organization doing to help survivors? Can you provide links to places I've missed? Only one thing is sure: our best comes out when we help each other.

Sunday, August 30, 2009

Many Tribes Episode 3: American Deaf Exposition

Today we visit a New York landmark - the annual Deaf Exposition - at another landmark, the South Street Seaport in downtown Manhattan. We take time to meet local organizations.

Many Tribes Episode 2: Internet Captioning and HR 3101


The impact of limited captioning on the internet and the importance of H.R. 3101 is discussed in this vlog.

Sunday, March 15, 2009

27: What do we want the future of Deaf schools to look like?

I think this is an important question which the Deaf community doesn't want to answer because such an answer would be extremely difficult. We complain about schools closing, but there is little proactive thought, based in historical analysis, on what would be a practical future for Deaf schools, and why.

First we have to admit that there is little doubt that the old model of Deaf school is not capable of surviving in the current environment. More importantly, I am not sure we want it to. There are many reasons, some of them to do with both of these factors. Financial reasons are one; there simply aren't the funds available to support two Deaf populations, and this country has made a decision, without Deaf people's involvement, that mainstreaming is the way to go. On a deeper level, we as a community have rejected the old formulation of Deafness as a functional disability, preferring to view it, at most, as a socio-cultural disability, choosing to believe follow the pedagogy of the oppressed. Continuing to accept funds based on the old formulation of Deaf people as disabled charity cases poisons this more hopeful formulation of the future.

But the rejection of such funding forces us to face a horrible truth: that there is a prevalent disability among Deaf people. This disability is called language deficiency. It poisons Deaf peoples' ability to communicate in any language, whether it be A.S.L. or English or Swahili. It is a disease caused by lack of coherent, organized exposure to language. (One has, after all, to be able to discern a system within language, to recognize it as language, in order to use it as language.)

One of the reasons, poorly articulated, why the Deaf community harbors a smoldering resentment against cochlear implants, is because those who work in the core of the Deaf community, are the ones who work most often with the victims of such a disability. Ranging from mild (difficulty comprehending organized language and producing coherent sentences) to severe (bordering on heavy aphasia), these victims often work with Certified Deaf Interpreters, social workers, case managers, and volunteers.

What does this have to do with cochlear implants? The answer comes from the aforementioned historical perspective. We came from such a linguistically deficient position. (Think: the wild boy of Aveyron.) Once population numbers rose enough to develop our own languages, a distinct grammar, structure, and tradition arose. (Look at what researchers are discovering today in villages and towns in Nicaragua, for example, and Israel.) The rise of manual education, education using signed languages, minimized this condition by ensuring Deaf children had exposure to a language. The subsequent success of Deaf people led to the development of oral education. Deaf people, obviously, could be intelligent. Perhaps if one simply prevented them from using signed languages, they would begin to speak. This led to a rise in language deficiency, and a subsequent return to manual education.

The pattern has continued throughout history; the cochlear implantation situation is the latest such iteration. I will not go into all the arguments for or against here. I think what has not been said is that, at minimum, the Deaf community can be said to desire a guarantee that the children involved will not face linguistic deprivation. Since there is no guarantee of a cochlear implant's effectiveness, the only way to ensure such a thing is to use a bilingual form of education. This is the only way we can guarantee a child will not suffer from this terrible disability. And teaching A.S.L. is the only way we can guarantee independence for the individual in case of device failure.

It is hard to explain this to hearing parents because they do not see the distinction, often, until it is too late, and they meet signing Deaf adults - sometimes the very adults who wind up helping take care of their child.

Deaf schools have been trying for such a form of education. Bi/Bi education is one result of such efforts. In my own research, I've criticized such attempts, comparing them with attempts by other cultures. Schools which teach French and Spanish, for example, involve students from both cultures. Shouldn't a successful model of bilingual education for Deaf students also involve students from the hearing "world," who use English as their primary language?

"But that's mainstreaming!" people gasp.

Except for the fact that we are still involving Deaf adults in the process - yes. A bilingual program only succeeds if it is bilingual at all levels. A mainstream school has no adult models for the Deaf child. In New York, a program called Hearing Education Services sends Deaf or signing adults to different programs with mainstreamed Deaf students. They see a Deaf adult once a month. The hearing students in the school never do, and learn and have no respect for the Deaf child's primary language and culture. (Meanwhile, they celebrate as many as they can think of, and conveniently ignore our stripe in the multicultural rainbow.)

Equally true is that a truly bilingual program requires commitment from all participants, which means Deaf adults in the program, as well as being skilled in A.S.L., must show and maintain their skill in the second language, whether it's English or Spanish or what have you. Just as we demand excellence from hearing staff, we all need to demand excellence from ourselves.

And having a population with students from both groups has many obvious advantages - not least that, by asking Deaf students to compete with hearing kids, we're telling them we believe they can. (In my school, which is slowly studying bilingualism and deciding what's best for our program, we still separate Deaf and hearing kids during state tests, because I.E.P.'s demand it. The Deaf kids are continually comparing themselves to the hearing kids, and often do as well if not better. I imagine the kind of subconscious psychological boost this offers is extremely powerful.) Deaf and hearing kids have role models for Deaf and hearing behavior and interaction.

But without dealing with that horrific disability - the disability which hearing parents cannot see - we cannot reach this stage, and we cannot begin to remake not only how we see ourselves, but how the world sees us. I hope this offering has given people some idea of how future Deaf schools might look. I intended only to give people some thoughts...

Sunday, February 22, 2009

26: Why Bother Saving Deaf Schools?

One of the questions buzzing around on blogs recently is this: why bother saving Deaf schools? To me the answers have become obvious after two years of working in the public school system, and many years as a mainstreamed student in the public school system. I ask people to please consider these reasons. They are drawn from personal experience.

1. Deaf children in mainstreamed programs are not - cannot - be given full access through an A.S.L. interpreter, except in lucky circumstances. Even NYC public schools, which have their own interpreting organization, cannot fill all available jobs. Should students want to join many extracurricular activities the problem would be far worse but I believe they are jaded and do not try. Parents! If your child becomes mainstreamed, find them programs they can be involved in. Better: find programs which have some Deaf children and maybe one or two Deaf adults. Give your child role models and don't let them feel alone as they grow!

2. Interpreters in education systems have a different role than regular interpreters which is highly important, often ignored and still not fully understood, especially when it comes to language development. The R.I.D., an organization which certifies interpreters and has done a magnificent job of raising standards, only began exploring this rich field a few years ago.

3. More confusingly, Deaf students need education in A.S.L. to develop their command of that language, especially if they are to use it to learn other languages!

4. Mainstreamed programs rarely have many other Deaf children, Deaf adults, or Deaf staff/faculty/administrator. This is important because students need models in how to communicate with each other. Not every student winds up with Invisibility Disease - some students are happy in mainstreamed programs (girls tend to do better than boys, possibly fitting more easily into gender roles. Boys tend to develop symptoms of frustration, especially if not given an outlet.)

5. This is also important because you have nobody checking that a) your child has appropriate access b) your child is being given appropriate expectations and c) your child has a good environmental setup that aids them in learning and even d) that your child's teachers have access to resources and materials to make all this happen on a regular basis. All of these things happen naturally in a Deaf school. An aggressive student in a mainstreamed program can force these things to become accessible, but the fight is draining and discouraging- especially without a Deaf adult in the school to stand by you and say yes, he's not exaggerating, he can't just teach another kid fingerspelling and have them walk with him all day every day at school! (Principals have actually suggested this before.)

6. This is also important because not having Deaf adults at the school your child goes to means that standards and challenges may not be as high for your child as it would be for "normal" children. Teachers have attitudes about Deafness as do other people.

Just some thoughts. I realize these may be difficult for people to accept but wanted to offer some observations.

Wednesday, February 18, 2009

25: Speaking to me

Sometimes I wonder why all the effort in Deaf education is spent towards getting Deaf children to speak. It often doesn't matter. Your voice can be a rich patina of textured sound. As long as you are a Deaf person, that takes precedence... I have spoken to people who understand me perfectly until they are made to understand that I am Deaf. After that, no matter what I do, I am incomprehensible, and we must write to communicate. Other Deaf people have reported the same experience. Based on these casual observations, we can form the hypothesis that people's opinions and prejudices about Deaf people have much more power than any one individual's ability to learn to speak or hear better. The power of the stereotype, with all its opinions and prejudices, is deadly. It is those opinions and prejudices, in the end, which cost us more and keep us further away from success.

It almost does not matter whether or not you believe Deaf people are an individual people with their own culture and experiences and language. No matter what you believe, Deaf people will experience many of the same things such minorities do, including, as I've explained above, stereotyping. Reality is subject to the power of the stereotype. Just as there were once African Americans who, despite repeated evidence that they could produce remarkable calligraphy, were proclaimed illiterate, there are still unconscious prejudices which make people see Deaf people as terra incommunicado.

I experience this on a daily basis in my classroom. Some of the hearing kids I teach "get it" quickly, signing to me or speaking to me or otherwise trying to communicate with me. These are the kids I respect the most. Other kids have a hard time getting past their built-in audism. They ask their friends to talk or sign to me, or they don't even bother, or they look around for a substitute adult (in our school, we are lucky, since such adults are likely to reinforce my authority in the classroom and direct the child to talk to me. In a normal school, another adult would be more likely to take away from my authority, and take charge of the answer.) If there is an interpreter available, they whisper to him or her to ask him, ask him... Sometimes I feel rather like an ancient Greek oracle, accessible only to a chosen few.

I teach English, so communication becomes of even more importance. Rather than seeing my Deaf nature as a disadvantage, I see it as a huge advantage. Establishing protocols for effective communication and teaching children to learn how to use those protocols is highly beneficial. Teaching hearing children that very Deaf skill, the skill of being able to try communication method no. 1, then no. 2, then no. 3, until every possible method has been tried - teaching that could be very beneficial!

But getting kids over that communication barrier - the barriers they bring with them - is a very difficult job, and I haven't found a complete and easy solution yet. Take things one by one, I guess.

Tuesday, February 10, 2009

24: Deaf Education and Interpreters: A Rant

You can't split up the two. A Deaf child cannot get an education in a public school without an A.S.L. interpreter of some sort.

The shame is that the Deaf child's interpreting needs are attacked on all sides!

The school which enrolls the Deaf child often dislikes the expidenture of a trained, certified interpreter. They look for the cheapest agency, the cheapest provision. Even colleges, right now, look for ways to save money by hiring one interpreter instead of two (A.S.L. interpreting is a pretty tough profession physically and the Registry of Interpreters for the Deaf (RID) requires two for a job longer than an hour) or looking for unqualified subsitutes, who I will call 'signers.' Currently, for example, City University colleges are attempting to subvert these rules, and local groups are attempting to assess the seriousness of the problem. The situation is far more dire in public schools.

The teacher is often uncomfortable with the presence of another adult, another authority in the classroom. They do not like that there exists a bubble of communication that the teacher cannot penetrate, that the interpreter can break the rules by 'talking' at the same time the teacher does. They certainly cannot judge the quality of the 'signer' and make sure that the child is receiving the class information in an educational way. (I recall a story about a girl who took a spelling quiz. Her signer, unqualified of course, fingerspelled every word - not much of a challenge for the girl!) I do not see any resources available on RID for other organizations for teaching professionals, Deaf or hearing. I have been able to find this document, Teaching the Teachers, from the ISLR projects at the Ohio School for the Deaf.

The interpreting profession itself dislikes classroom work, calling it mean and low-quality, and so educated professionals look down on the people who need them most. RID has finally asked for A.S.L. interpreting to require a B.A. degree, but this still does not put them on a level with teachers - or give teachers a good model for how to use A.S.L. interpreters. (RID finally accepted educational interpreters as a group in approximately 2006, changing their rules to accept the results of the Educational Interpreter Performance Assessment. Their website states that "Educational Interpreters have always been an important part of the mission and programs of RID; however, it has not been until recent that we have really embraced this population of interpreters into the organization... we have taken great strides to become more inclusive to the educational interpreter and wholeheartedly welcome you into RID’s membership." (RID, 2006) Accepting the results of this test seems to be the only 'great stride' they have taken!

The 'signers' often chosen in public schools have little A.S.L. education, but they hold on to their jobs with tenacity! Usually only the student is 'qualified' (I use the word loosely) to judge the A.S.L. interpreter, but since the teacher often brings up new subjects, the 'signer' could fart three times into a hat and tell the student believably that this is the sign for cardiovascular. They would then get a round of applause from their admiring audience; 'signers' are never far from admiration for their 'abilities'!

If the 'signers' ARE qualified, they can be called interpreters. But then there's a host of other problems for the student - dealing with the Overbearing Interpreter, whose parents are deaf and who Just Wants To Take Care of Everything for You; the In Charge interpreter, who sets up the situation, chooses your partner in labs and in class based on their ease and preferences; the Glib Interpreter, who just missed that important fact in class but is too embarrassed to admit they can make a mistake and so just hide their mistake and continue on...

The pressures of adolescence, also - to not be different, to satisfy their parents, their friends - all prevent the Deaf child from fully engaging with their interpreting needs. With all these pressures, it's no wonder the highly-qualified interpreter prefers board meetings or the clinical coldness of the Video Relay Interpreting booth.

And as long as the situation is ignored, schools have no right to complain about the third- to fourth-grade reading level of Deaf students - they're contributing to the situation!

Anything to add?